Sunday, November 9, 2008

Make A Wish

Before Henry relapsed we had planned his Make A Wish trip for a week in Orlando. Allow me to briefly plug what fabulous organizations both Make A Wish, and Give Kids the World (a resort in Orlando dedicated to children granted wish trips on the basis of life threatening health conditions) are.

I have seen other families dealing with pediatric cancer take their wish trips after a child has relapsed, when eventual loss is inevitable. I always felt certain that were I in their shoes the entire experience would be one of recurrent agony, with every moment poisonously laced with the knowledge that it would indeed never occur again.

Isn't that the case already?

We had a fabulous trip. There were tears, and sadness, but more than that was joy and happiness. To be honest, the trip was a bit much for Henry, who wasn't feeling up to everything that we dragged him through. But for the girls it was magical, and even Henry had a number of magical moments.

He continues to feel well. He's very relaxed, happy to be home and with the people he loves, and not currently uncomfortable in any way. Of course, the oncologist can't tell us how long we have with him. We've elected to use some oral chemo to extend the time that he has, which sounds to be somewhere between a couple months to a year, with the shorter end of that more likely.

This continues to be a magical time for me. Time seems to have slowed down somewhat, and I am treasuring the experiences that we all have together. There is a current of sadness, but the bulk of the emotion is headed toward happy shores. I have the distinct feeling that though I expected it to feel differently, this is exactly how it is supposed to feel.

11 comments:

Anonymous said...

I am so glad your family had this "magical time" together!

RRNC

ArkieRN said...

Your family continues to be in my prayers. Mostly I pray that Henry has as little pain as possible right through the end.

rlbates said...

I know I don't live near you in distance, but if there is anything I can do for you, please, let me know. So glad you continue to make memories that are happy and magical.

...tom... said...

...

What the others have already said...

I am sure you do not feel particularly stoic or heroic in enduring this whole experience ... but allow me to assign you those attributes, and many more, regardless of the truth...


Godspeed, or best wishes ...whichever works.


...tom...
"The heart's memory eliminates the bad and magnifies the good; and thanks to this artifice we manage to endure the burdens of the past."
--Gabriel Garcia Marquez
.

Laura said...

You are such an incredibly strong woman. I admire you. I pray for peace for you and your family, for joy in the time that you have together, and for a peaceful passing when Henry's time comes. Take care.

Anonymous said...

Hope you continue to make magical memories to last a lifetime!

When a loved one dies, it's a real help to know you did everything you reasonably could to make their time happy and their passing as easy as possible.

Enjoy the time you have with Henry, and insofar as you are able, help him enjoy the time with you.

femail doc said...

Listen to these words you're using: fabulous, joy, happiness, magical, relaxed, treasuring. Your family has created a very special place with all the time there is with your beautiful boy. That's all we've got and all we can do, isn't it?

Dragonfly said...

Glad you are having this special time together. Keeping your family in my prayers.

Anonymous said...

God be with you and your family.

JeanMac said...

Magical times and happy shores - I wish I could help - sending our love to you and yours. Jean

TBTAM said...

My thoughts and prayers are with you and your family.