Wednesday, February 4, 2009

Roundabout

A recent source of humor for us has been Henry's style of speaking. He never asks for anything directly, but instead comes about it in a roundabout manner. "These are really good chocolate chips," he'll say, and patiently wait for you to ask him if he wants any more. If I fail to follow his cues, he casually moves his hands as if to say, "Well?".

We're surmising this derives from our manner of speaking to him over the last year plus. It's been important to him, and easier for us, if things seem to be his idea (which I guess is the case with most of us).

Henry has recently taken a turn for the worse. His tumor has grown, we are planning on trying another palliative chemo, but we frankly don't expect much benefit from it. He continues to feel well several hours a day, but the fatigue and nausea gets the better of him, especially at night, and he gets very agitated.

He continues to take everything in stride. He never asks why he's not feeling well, why he gets medicine several times a day, why he can't seem to sleep more than a few hours at a stretch. But sometimes, when he's very upset, he cries "I just don't know why I don't feel good", and I wonder if he's asking me in his roundabout way to answer him.

7 comments:

rlbates said...

I wish I could do more for you than just keep you in my thoughts.

JeanMac said...

As usual, sending a hug. He is such a terrific little fellow.

...tom... said...

...

... and I wonder if he's asking me in his roundabout way to answer him.

Oh God.

I would say you can not imagine how . . .'sorrowful' those words, that thought, are to read ... but I am sure you can many times over.


...sigh... As usual we have nothing but thoughts and prayers to offer...


...tom...
.

Cousin Dave said...

We think of you often.

liz said...

my heart breaks for Henry, you, your family...wishing you all love and great strength...

Anonymous said...

What a special guy Henry is....he is surrounded by love, hugs and understanding. take care
k3p3

Bianca Castafiore said...

The night is hard -- I hope Henry will be able to rest in it -- hope all of you can rest in it. This way of talking Henry now has is interesting -- it's an invitation.

I know you will all have the conversations you need to have.

Thank you very much for sharing these things.